Our Lives Matter Too

Our Lives Matter Too

@nostigmaforpain

Followers963
Following359

AKA @PainPtFightBack, registered nurse in a distant life, Pls DM me info re pain patient suicides, heart attacks/strokes during pain flares, etc

Joined on November 17, 2015
@nostigmaforpain Statistics

We looked inside some of the tweets by @nostigmaforpain and found useful information for you.

Inside 100 Tweets

Time between tweets:
9 days
Average replies
10
Average retweets
42
Average likes
81
Tweets with photos
10 / 100
Tweets with videos
0 / 100
Tweets with links
0 / 100
Fun Fact

Over the span of 16 days, the London Olympics generated 150 million tweets.

13/For those eager to make one number go down and not interested in evidence-based patient protection ignore the last 12 tweets. But for the rest, let’s recognize a need for moral & tangible support to protect patients who have long-term pain, who are on opioids.

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12/Remember that the FDA issued a warning on this issue, and the CDC issued a clarification of its own Guideline, for which I was incredibly thankful

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11/Remember that opioid stoppage in this New York Study was associated with discontinuation of care relationships. https://www.ncbi.nlm.nih.gov/pubmed/31079950 

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9/Remember that opioid stoppage from high dose (>120 MME) among Vermont Medicaid patients was typically fast and often followed by emergency department visits:

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8/This is either the 3rd study of 2019 to signal real-world reasons for concern about opioid stoppage as it typically occurs in practice, even though the case is compelling to me that expertly-conducted taper will, for some patients, prove quite helpful https://www.ncbi.nlm.nih.gov/pubmed/28715848 

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7/The @uw author team makes this nice point: If clinicians harbor concerns about addiction in their pain patients on opioids, then rapid referral to medication treatment is crucial, and their clinic now offers that service. Every clinic should do that, I think

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6/Among persons discontinued from opioids, 45% were no longer seen in the clinic. It is hard to make patients safe if you never see them.

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5/The authors properly state that the "red flags" that led docs to stop opioids often indicate risks that could have led to death, independent of opioids stopping. We can’t assume stoppage “caused death”. AND: neither can we say stoppage “made patient safer”

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4/This was a sick, vulnerable patient group. 21% (119 of 572) of patients died during follow-up, 4% of overdose. Overdose death was 3-fold higher for discontinued patients (4.9% of the discontinued, 1.8% of the not-discontinued). All 17 ODs had a provider-initiated stoppage.

4/This was a sick, vulnerable patient group. 21% (119 of 572) of patients died during follow-up, 4% of overdose. Overdose death was 3-fold higher for discontinued patients (4.9% of the discontinued, 1.8% of the not-discontinued). All 17 ODs had a provider-initiated stoppage.

3/Of 572 opioid patients, 60.1% discontinued. Among reasons for stopping, more were provider-initiated & common reasons were: unexpected urine tox results, missed appointments, diagnosed substance use or mental health disorder & others. Things that do worry us about safety!

3/Of 572 opioid patients, 60.1% discontinued. Among reasons for stopping, more were provider-initiated & common reasons were: unexpected urine tox results, missed appointments, diagnosed substance use or mental health disorder & others. Things that do worry us about safety!

2/Experts at @uw analyzed patients on opioids as of May 2010, in a safety-net clinic that started its opioid safety efforts in 2010. They had a registry of opioid recipients, & tracked who went off. Here’s the article link:

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1/Let me share my view on the 3rd study of 2019 showing pain patients are not always safer after opioid stoppage, under real world conditions. A 3-fold increase in overdose death draws my eye. Don’t jump to conclusions, but let's study what was found

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People with pain are too often stigmatized in the health care system and in society, which can lead to delayed diagnosis or misdiagnosis, bias in treatment, and decreased effectiveness of care. #PainAwarenessMonth

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Replying to @headdock @BostonPainCare

Yes, I pull PMP every month and UDS every month. Why recommend only quarterly? Doc’s job is to constantly assess risk/ benefit. IMHO, I don’t see these three as credible authorities on how to run my pain practice.

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If a presidential candidate stepped up to advocate for #pain patients would you vote for them? Please retweet this 5 day poll. With a million 'Yes' answers it might get someone's attention.

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#TakeBackDay The authors of the CDC’s opioid guidelines say they’ve been misapplied

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Replying to @Veronic41752363 @stupor2016 and 37 others

How about helping the ones fighting back against the tyranny of the DEA win! When we win every one connected to PM wins. Enough wins will end the steady loss of pain management due to threats, intimidation & imprisonments. Used to think only “bad” docs were arrested. NOT!

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Thanks for a really neat opportunity @jennyrogersDC, @washingtonpost, & @maiasz!

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So many comments on @JanHoffmanNYT & @abbygoodnough’s @nytimes article re: HP3 letter to @CDCgov @CDCDirector @DebHouryCDC Here’s a few, add yours or any you feel are esp powerful (make sure comments by others are publicly accessible-not in closed groups)

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More coverage of the HP3 letter, @KeithNHumphreys interviewed on @WWLAMFM.

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